Scotland's voice for spina bifida, hydrocephalus and related conditions.
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Latest news

Rugby Legend John Beattie leads A Question of Burns

Continuing a 25 year run of exceptional Burns Suppers with the finest of Burns speakers and the most sumptuous of Scottish Fayre, the Scottish Spina Bifida Association are now launching our new incarnation of the event, ‘A Question of Burns’ on Thursday 22nd January 2015.

Weir Engineering Services Alloa donate £4,000 to SSBA

Weir Engineering Services Alloa attended a charity Golf Day held by SSE Fiddlers Ferry Power Station on Thursday 3rd July and unfortunately they came last. However their failure on the course led to a victory in the dining room as the losing team were awarded a generous cheque for a charity of their choosing. This surprise twist in their day led to a £4,000 donation being made to Weir’s nominated charity, the Scottish Spina Bifida Association (SSBA).

Our Honorary Patron Gordon Ramsay OBE continues his support with the Gordon Ramsay Foundation

The SSBA is very grateful to be one of the chosen charities of the Gordon Ramsay Foundation; Gordon has supported us for almost 10 years now after meeting our Chairperson Dr Margo Whiteford at the Great North Run. Over the years he has hosted many fundraising Gala Dinners in aid of the Association and has helped to raise awareness of our charity and the conditions of spina bifida and hydrocephalus worldwide.

The SSBA Gets Ready For World Spina Bifida & Hydrocephalus Day 2014

With World Spina Bifida & Hydrocephalus day taking place on Saturday 25th October 2014 the time for spreading the message far and wide is fast approaching!

Color Me Rad Glasgow/Livingston

We had a fantastic turn out of supporters at the recent Color Me Rad run on Saturday 23rd of August 2014 at the Glasgow/Livingston run!

Prof. Dan Young - Honorary President

We were all shocked and saddened to hear that Dan Young passed away on Sunday after a long illness. The Association owes a huge debt to Dan over many years. He will be greatly missed by his very special family at the Scottish Spina Bifida Association.

Online sponsorship still a great way for supporters to generate funds

Despite yesterday's news regarding the CharityGiving website, which has been now been suspended by the Charity Commission, we wanted to reassure all our supporters that the online donations sites which the Scottish Spina Bifida Association is affiliated to (,, virginmoneygiving and Charity Choice) have not been affected and they assure us, won't be affected.

2 New Projects Provide Important Support for Young People and Carers

2 New Projects just launching with the Scottish Spina Bifida Association are providing important support for young people and carers.

SSBA Supporter takes on Ultra Marathon Challenge

On 6th April 2013 – Allan Conry, a supporter of the Association took part in what was a physically and mentally demanding 56 mile ultra marathon race from Glasgow to Edinburgh to raise funds for the Association.

Healthy Competition between Businesses Starts in Glasgow with the Inter Office Challenge

The Scottish Spina Bifida Association have become the nominated charity for the Inter Office Sports Challenge run by Broomhill Camps. As the name suggests, this is an opportunity for Office Workers to compete against one another in a competitive and professionally organised inter sports league.

Get Moving Group Update

Please note that the walk we had scheduled for tomorrow (Saturday) has had to be CANCELLED as many of you are working. We will now take a walk on Sunday 5th May in Callendar Park Falkirk instead. Meet us at the front of Callender House at2PM. There is ample free parking available, but the disabled parking is not great.

Get Moving Group

Kevin Hutton is one of the Community Ambassadors for the Scottish Spina Bifida Association and as part of his volunteer role with the Association he is organising a series of healthy activities for you, our service users to take part in. This group is called 'Get Moving'.

As part of the Get Moving Group, which is a special walk, roll and stroll group aimed at promoting health and wellbeing in all those affected by Spina Bifida and/or hydrocephalus, Kevin will be working with you, our service users on activities that you would like to take part in.

Dragon's Dare

We've seen the Dragon's Den with brave entrepreneurs pitching their, sometimes sublime, sometimes ridiculous, business ideas. And we've enjoyed watching them being put through their paces by the Dragons. But have you ever thought you had what it takes to make a business idea come to life?

The Great Big Property Gig

The Great Big Property Gig is being held at The Ferry, Glasgow on Thursday 13th June and all funds raised on the evening will go to the two nominated charities - Cancer Research UK and the Scottish Spina Bifida Association.

The Scottish Spina Bifida Association would like to thank En Croute Catering Ltd as they have just become the latest sponsor for the Great Big Property Gig by providing refreshments on the night - we are thankful for their generous support!

This is the eighth year of the property gig and we're really looking forward to what's set to be another fantastic event.

Edinburgh Marathon Running Challenge

The Edinburgh Marathon Festival takes place on 26th/27th May and your 2013 running challenge awaits you!

We need your support to encourage as many people as possible to get involved in the Edinburgh Marathon Festival. Why not take part in the marathon, half marathon or 10k and even get the kids involved in the junior 3k race.

Standard places for the Edinburgh Marathon have now closed but don't panic - we have GUARANTEED charity places available up until Monday 8th April 2013.

Known as the UK's fastest Marathon, the Edinburgh course is flat as a pancake, has a fantastic crowd atmosphere and allows you to take in the historic sites of Edinburgh! The SSBA runners will go a long way in helping to raise vital funds for the Scottish Spina Bifida Association so why not run for SSBA?

If you are looking for last minute places or know anyone who would want to take part then email, call 01236 794508 or click this link.

For more information about fundraising remember to follow us on Facebook and Twitter.

Ladies who give an F* Lunch - Glasgow

The Ladies who give an F* Lunch in Dundee was a success, having raised £5,000 for the Association. We would like to take the opportunity to thank all of those who were involved in this fantastic day!

For those of you who missed the Dundee Ladies Lunch - you can still get tickets for the Glasgow Lunch - on Sunday 2nd June 2013 in The Radisson BLU Hotel, Glasgow.

Join us for another fabulous afternoon of live entertainment, fun and laughter as we raise vital funds for the Scottish Spina Bifida Association.

Ladies will be treated to a sparkling reception, mouth watering two course lunch, followed by fabulous games, prizes and surprises! Your ticket includes: a champagne reception, sumptuous two course lunch, raffle, auction, games and disco/live entertainment.

Don't Delay - Vote SSBA Today!

Direct Debit Big Break and their supporters are giving to 100 charities and good causes this year and it's up to you to decide on who deserves a Big Break.

The Scottish Spina Bifida Association has been nominated for the chance to win!

The cause with the most votes at the end of this month will receive a £2,000 cash donation from Direct Debit. The runner up will recieve £1,000, and the next 20 will get £100 each.

Your continued support is vital and greatly appreciated as our fundraising team have to raise almost £1million per year to maintain our core services. Therefore we need YOU to vote for us and to give us a Big Break!

Please vote for us by clicking HERE, then click on Vote For This Cause. You can visit the Direct Debit website for more information.

Very importantly - you only have until 31st March to get your vote in, so don't delay, please vote today!

Meet Nika - Our Newest Ambassador

The Scottish Spina Bifida Association is delighted to announce that Nika (born Nicola Cassells), is our newest Ambassador!

Nika is a modern classical singer who has supported the Association over the past few years by getting involved in as many ways as she can.

As well as many performances at Association events, the 23 year old modern classical singer from Ayr is now showing her support by getting involved with fundraising. She will be donating 5% of sales from her merchandise and album to the Association so the more people we encourage to support her, the better! We are extremely grateful for all she has done so far!

Peterhead Running Festival

We are pleased to announce that the Peterhead Running Festival has chosen The Scottish Spina Bifida Association, as one of their nominated charities.

If you have been keeping up to date with the Association over the past couple of months, you will know about our Fitness 100 Club - We are looking for 100 people to take part in raising a minimum of £100 throughout the year by taking part in different sponsored activities whilst getting fit!

In order to kick start your Fitness 100 goal – why not get involved with the Peterhead Running Festival on 30th June at Catto Park Playing Fields and Running Tracks.

Here are a few suggestions to get you going…

Peterhead Half Marathon


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