Scotland's voice for spina bifida, hydrocephalus and related conditions.
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Latest news

"Mummy you look beautiful in your running costume!" - Marathon Final Blog

With the Edinburgh Marathon Relay only days away, our parent/fundraiser/inspirational blogger, Gill Currie, has sent in her final pre-race blog.

Make another vote count this week

It’s a big week for the UK’s political parties but it’s an even bigger month for the Scottish Spina Bifida Association (SSBA). The SSBA are nominated for the Aviva Community Awards with the possibility of securing £25,000 in funding for our Infant Support Project.

She did it - 3 miles! A runners blog, part 2.

Following on from her last blog, Team SSBA's Fundraising Mum, Gill Currie, is now 3 miles fitter...

Getting Ready for a First Marathon Relay. A Runners Blog - Part 1

Gill Currie - SSBA Marathon Blog - Part 1

SSBA Launches new Legal Aid Campaign with Carr Berman Crichton Solicitors

We are excited to launch our new Legal Aid Campaign in partnership with Carr Berman Crichton (CBC) Solicitors.

Updated Holiday Tips

Sunny February, just the right mixture of rain, snow and ice to make you think of warmer climates off in exotic locations.

Rugby Legend John Beattie leads A Question of Burns

Continuing a 25 year run of exceptional Burns Suppers with the finest of Burns speakers and the most sumptuous of Scottish Fayre, the Scottish Spina Bifida Association are now launching our new incarnation of the event, ‘A Question of Burns’ on Thursday 22nd January 2015.

Weir Engineering Services Alloa donate £4,000 to SSBA

Weir Engineering Services Alloa attended a charity Golf Day held by SSE Fiddlers Ferry Power Station on Thursday 3rd July and unfortunately they came last. However their failure on the course led to a victory in the dining room as the losing team were awarded a generous cheque for a charity of their choosing. This surprise twist in their day led to a £4,000 donation being made to Weir’s nominated charity, the Scottish Spina Bifida Association (SSBA).

Our Honorary Patron Gordon Ramsay OBE continues his support with the Gordon Ramsay Foundation

The SSBA is very grateful to be one of the chosen charities of the Gordon Ramsay Foundation; Gordon has supported us for almost 10 years now after meeting our Chairperson Dr Margo Whiteford at the Great North Run. Over the years he has hosted many fundraising Gala Dinners in aid of the Association and has helped to raise awareness of our charity and the conditions of spina bifida and hydrocephalus worldwide.

The SSBA Gets Ready For World Spina Bifida & Hydrocephalus Day 2014

With World Spina Bifida & Hydrocephalus day taking place on Saturday 25th October 2014 the time for spreading the message far and wide is fast approaching!

Color Me Rad Glasgow/Livingston

We had a fantastic turn out of supporters at the recent Color Me Rad run on Saturday 23rd of August 2014 at the Glasgow/Livingston run!

Prof. Dan Young - Honorary President

We were all shocked and saddened to hear that Dan Young passed away on Sunday after a long illness. The Association owes a huge debt to Dan over many years. He will be greatly missed by his very special family at the Scottish Spina Bifida Association.

Online sponsorship still a great way for supporters to generate funds

Despite yesterday's news regarding the CharityGiving website, which has been now been suspended by the Charity Commission, we wanted to reassure all our supporters that the online donations sites which the Scottish Spina Bifida Association is affiliated to (,, virginmoneygiving and Charity Choice) have not been affected and they assure us, won't be affected.

2 New Projects Provide Important Support for Young People and Carers

2 New Projects just launching with the Scottish Spina Bifida Association are providing important support for young people and carers.

SSBA Supporter takes on Ultra Marathon Challenge

On 6th April 2013 – Allan Conry, a supporter of the Association took part in what was a physically and mentally demanding 56 mile ultra marathon race from Glasgow to Edinburgh to raise funds for the Association.

Healthy Competition between Businesses Starts in Glasgow with the Inter Office Challenge

The Scottish Spina Bifida Association have become the nominated charity for the Inter Office Sports Challenge run by Broomhill Camps. As the name suggests, this is an opportunity for Office Workers to compete against one another in a competitive and professionally organised inter sports league.

Get Moving Group Update

Please note that the walk we had scheduled for tomorrow (Saturday) has had to be CANCELLED as many of you are working. We will now take a walk on Sunday 5th May in Callendar Park Falkirk instead. Meet us at the front of Callender House at2PM. There is ample free parking available, but the disabled parking is not great.


Fundraising standards board  Positive about disabled people
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