Support for adults
How can we help?
Our main aim is to provide advice, advocacy and support to children, adults and families and all others affected by spina bifida and/or hydrocephalus. Having access to the right advice and support helps ease the stress of daily living.
Currently over 3000 registered users of the Association benefit from access to a lo-call telephone help line that puts them in direct contact with a Family Support Worker. This is a professional service staffed by specialist support workers.
Every individual or family situation is unique and therefore requires unique support but our primary services include:
We can provide information and advice on health related issues such as continence and mobility and liaise with health professionals such as consultants, continence and pain management advisors
Advice and information is available on such topics as college or university courses, student grants, your rights, and disability discrimination
We can help if you have to apply for house adaptions, or need to move to more suitable housing
We can apply for grants on your behalf for assistance with the cost of such things as holidays, clothing and bedding
We provide information and advice on mobility issues and the sourcing and purchasing of specially adapted equipment including cars and wheelchairs
There are some specific benefits you will be entitled to and we can assist with completing the applications
If you would like someone to accompany you to a hospital visit, or other meeting, we would be happy to do so. At other times you may just like to know what your rights are. We are also happy to provide information to colleges, universities, or employers
Advice and information on planning for the future, building personal relationships or responding to social barriers that may be encountered
Leisure & Recreation
We have various activities and groups for all age groups - contact us for more details or go to "what's on in your area".
Our Specialist Nurse is able to carry out a detailed health check including weight, height and urinalysis. She will also be able to provide information and advice on diet, skin care, continence management, relaxation techniques and stress management.
Call us about spina bifida and/or hydrocephalus on 08459 11 11 12 - We can help.
We provide a lo-call telephone number which means you will only be charged the local call rate. Both home or hospital visits may be arranged.
A Family Support Worker will be available between the hours of 09:30am - 4:30pm Monday to Friday.
At other times please leave a message on the answering machine and all messages will be responded to by the next working day.