Scotland's voice for spina bifida, hydrocephalus and related conditions.
Helpline 08459 11 11 12
General enquiries 01236 794500
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Lo-Call Helpline

Tel: 08459 11 11 12 (Lo-Call Rate)

How can we help?

The Scottish Spina Bifida Association is the only Scottish charity which offers support, advice and assistance to people with spina bifida and/or hydrocephalus, their families, carers and associated professionals. We provide a lo-call telephone number which means you will only be charged the local call rate. Both home or hospital visits may be arranged. A Support Worker will be available between the hours of 9.30am - 4pm Monday to Friday. At other times please leave a message on the answering machine and all messages will be responded to.

Call us about...

Spina bifida or hydrocephalus

  • The causes and effects
  • Medical management: Spina bifida, hydrocephalus, anencephaly, benign intracranial hypertension, normal pressure hydrocephalus
  • Continence management
  • Shunt information
  • Isolation issues
  • Education and employment
  • Daily living activities
  • Local services and how to get them

We can offer:

  • Direct contact with one of our Family Support Staff Specialist
  • Advice on medical issues
  • Pre-conceptual, folic acid and pregnancy advice
  • Health checks for adults
  • Shunt alert cards
  • Local support groups
  • The Source Magazine
  • Relevant publications
  • Website


Contact Us

Helpline : 08459 11 11 12 (Lo-call rate)

Email :

Phone family-support-workers Helpline demi

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