Scotland's voice for spina bifida, hydrocephalus and related conditions.
Helpline 08459 11 11 12
General enquiries 01236 794500
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We need your help more than ever.

Over the last few years the Association has been badly affected by the current economic downturn. This is despite the best efforts of our hard working and resourceful fundraising team and, of course, our loyal supporters and service users who year on year raise almost £1million. Unfortunately, since 2010 we have experiencing a 30% reduction in income on an annual basis.


Unlike many Scottish charities, the Association generates approximately 98% of all its income through our own Fundraising Team. What this means is that on the 1st April each year the fundraising team start with a £0 balance and have to fundraise throughout the year to bring in enough income to provide the vital Family Support Services that our service users require.

However, the good news is that, despite this drop in income for our core Family Support services, we have been successful in securing new ring fenced money to develop brand new specialist projects that will benefit many of our service users who need even more specialist support.

The downside is that these new monies can only be used for these new projects and cannot be used to support our existing Family Support work. The projects are also time limited.

We have tried very hard to retain our current level of core Family Support service provision, but as a result of the reduction in income we have had to reduce expenditure, and as a result all staff positions have either had salaries reduced or hours cut. However we are working very hard to try to ensure that this will not impact on our current level of support.

The Direct Services Team will be meeting with users over the coming months to go into more detail the proposed service redesign and we hope that together we will be able to continue to offer the high level of service which they rightly deserve.

In these days of economic downturn "every penny is a prisoner" so we are making a special appeal “The Give a little Appeal” to all our supporters to help us fundraise by asking family, friends and colleagues to raise funds on our behalf or nominate us as their company charity. Every penny raised by our supporters stays in Scotland to maintain and develop our services and please do remember that every year we have to raise almost £1million to maintain our core services.


Further details of the Give a little Appeal are available here


Please navigate the side panel to find the perfect way to help us continue to make a big difference.

Thank you.

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